Baro Who?

Hello my F4 Tribe!!!

My my has it been a while since I have blogged!!! 2 months!!!!I will attempt to catch you up on life, well what’s been going on in my life. I kind of wish this was a dialogue because I would love to know what you all have been doing. Soooo…. feel free to leave me a quick synopsis of what’s going on under the comments section at the bottom.

Ok so this will be  two part post because I really want to update you BUT  I also want to talk to you about today’s topic; which is……………….. Barometric pressure!!! I absolutely hate it but I am excited to talk about it.

So what is this barometric pressure?

Barometric pressure is atmospheric pressure. (definition from google) I know I know, so official.

How does it affect humans? Well let me tell you what I have been told and experienced.

When asked the question “How does barometric pressure effect you” people with various illnesses said:

  • “I.feel.like.crap”
  • “my head feels like it’s going to pop off”
  • “my back hurts, my shoulders hurt and so do my feet”
  • “I can move”
  • “well, I’ve been in bed all day”
  • “doesn’t bother me much”
  • “my skin hurts on my hands and my legs”

So as I am typing my fingers are beginning to ache and my fingertips are burning as if I have touched something hot. How ironic! And this is why I am making this post. This will be a one part post now. Gotta role with the Fibro punches! So typically hours, sometimes a day before the rain my body begins to hurt. Since my accident I have had no days without pain. That is technically called a “Fibro Flare”. So essentially the traumatic experience or impact of the wreck sent my body into a  flare. And now is raining. I woke up this morning with elevated neck pain, elevated back pain, aching in my limbs, my face (cheek bones and jaw bones) shoulder pain and now my fingers are aching. The ache is similar to a cold, dull yet throbbing pain deep inside the bone. Flares can often be caused by: weather, physical or mental exhaustion or mental/emotional stress. The Fibromyalgia Support Group on Facebook that I speak of sometimes has countless examples of traumatic events that cause people to flares. For example: divorce, cheating spouse, illness of a child or death of friend of family member, car accidents, physical accidents, the common cold, strep  and other illnesses. There is so much that can trigger a flare. Each person is different and each Fibro case is different. Mine started off with extreme muscle cramps that lasted 45 min on average. The symptoms graduated to me not being able to walk sometimes and panic attacks. Now I just have severe pain all over my body. I rarely have pain where I can’t at least walk with a limp (lean with rock with it, haha) or push through it. I may be covered in pain patches BUT I AM MAKING IT!

Other symptoms like headaches, surgery scar tissue or plates, or increased maladaptive behaviors can be caused by barometric pressure change.

Well guys I am going to go rest and my hands have had enough of typing! I have Zumba tonight. YES I STILL TEACH! Now you knew better than to think that. Love you all!!

General Things I’m praying for:

  1. A baby that accidentally shot himself with a nail gun I think (some type of tool). He’s fighting for his life
  2. The family of the 15 year old who killed himself
  3. My friend who has not had more than 3 hours of sleep a night for the past 4-5 months
  4. 2 of my church family members who have broken bones
  5. All who have chronic or mental illnesses who suffer in silence

Songs that are keeping me going:

(ok so….pretty much the entire Songs for the Storm, Vol.1)

And of course my favorite because HE IS tending to me. He sees me. He is keeping me. I am His sheep and He is my Shepherd. And He will come see about me! HE will heal me! Ok let me stop because I when I think about how He is going to heal my bod y from this pain and this illness they say they don’t have a cure from I GET EXCITED and I CAN’T HELP BUT PRAISE HIM!!! WHEWWWWWW! He is So Good!

Have an amazing week Tribe and don’t forget to let me know how you are. Have you had or do you know anyone who experiences symptoms from barometric pressure? If so let me know!!

Standard

730 Days

Today 2/10 makes 2 years since the initial pain. 2 years, 730 days of uncertain and unwarranted pain.

I remember talking to my nephew while standing in the self-checkout line at Walmart when my calf muscles started burning. I thought I needed new shoes. I remember taking my shoes off to try and ease the pain. It didn’t work. By the time we reached our destination the majority of my body had locked up leaving me unable to move. I remember being terrified because this was a pain I had never felt before.

Fast forward 730 days and I’m in bed with tears in my eyes from more pain I’ve not felt before. I’ve been up since 3am. I initially thought it was a crick in my neck from sleeping wrong. The right side of my neck/shoulder has been tight for a few days. At 2 am I felt myself trying to stretch between my shoulder blades and readjust. At 3am I woke up screaming from a pulling burning pain that felt like it was gripping my flesh and nerves and pulling them away from my bones. The pain is sitting in the middle of my shoulders and radiating up my neck to the back of my head. There’s so much pressure I can barely see. It’s also across both shoulders.

I am also nursing an injured knee. So my right knee hurts and my left leg and Achilles stays tight. Not to mention my rib cage, lower back and hips 🤷🏾‍♀️😂. I was using crutches but that made my underarms hurt and nope!!! I need something to feel ok lol. My walk is ugly and slow BUT I’m walking.

I cut Pandora on to help me get moving. I needed some praise music. I needed to be in His presence. I could feel the enemy starting to remind me of failures and negative thoughts “it’s been 2 years. He hasn’t healed you. You’re going to be in pain forever”. I quickly cut the music up. Y’all the playlist for the first few songs was:

    This is a move https://youtu.be/8I7nJSKCgo0
    Blessed https://youtu.be/5TSEW94w9kY

As I was crossing the bridge I could hear “just drive on off. It’s gotta be better than feeling like this”. I started screaming His name! I needed Him. “Keep me God” “Keep my mind, heal my body, Come see about me God”. I screamed all the way to the gas station. Then on the radio I heard:

    He’ll Take the Pain Away https://youtu.be/Ud5X7NzwV_c
  • I got to church and the sang:
  • 1. So Glad I Made it https://youtu.be/mEv6KdGmESY
  • This song says “if you see me crying, it’s just a sign that I’m still alive. In spite of the storm and rain, heartache and pain… He’s building my testimony”. Annnnnd cue the ugly cry, swollen lips and bloodshot eyes. The devil is a lie! I made it through. I will make it through. He will heal me and it WONT always be like this!
  • Today has been a hard day. I have been as war internally and physically all day. I’m battling with the enemy over my mind and my body. It’s frustrating because I want to be healed. I’ve fasted, prayed, sowed seeds, cried, believed and trusted, been prayed over and changed my life and I have NEW SYMPTOMS! Why? Why God! Why is my healing not here? Where are you? He is here. This is hard and sometimes it feels like it may take me out BUT it won’t! I almost threw in the towel BUT God was right there wiping my face with it. He was holding on to he steering wheel when I drove. He was my vision when I couldn’t see. He is holding me together when I’m falling apart and He’s pushing me when I can’t take another step.
  • Past symptoms:
    • Nausea
      Blurred/ no vision
      Pain in fingers, hands, toes, feet
      Burning pain under feet
      Burning skin
      Locked jaw
      Easily exhausted
      Heavy random sweat
      Skin changes
      Broken and weakened fingernails
      Fatigued muscles
      Achy cold bones
      Swelling
      IBS
      Back pain
      Facial pain
      Depression
      Weight gain
      Foggy brain
      All day stiffness
      Bursitis In hips and butt
      Nerve damage
  • Now add in the trigger points and I think that’s it. This disease has certainly covered more aspects of my life than I ever imagined it would.
  • Past treatments (because they worked or didn’t work for me doesn’t mean anything for anyone else)
    • Gabapentin: didn’t work
      Lyrica: didn’t work
      Tramadol: doesn’t work
      Cymbalta: didn’t work
      Tumeric: doesn’t work
      Celebrex: works but didn’t like side effects
      Omega Red 4- in- 1: maybe
      Vitamin D: undecided
      Magnesium: undecided

    I’m sure there are more but I can’t remember.

  • In 2 years I have been lower than I ever imagined. I’ve also learned more about me than I ever thought. I’ve learned to ask questions, don’t take “no” or “I don’t know” for an answer when it comes to my health. I’ve learned that it’s ok to not be ok. I’ve learned to lean on others. I have an absolutely amazing support system. They help hold me up. We depend on each other!! I’ve learned that my body depends on me to eat better and it DOES NOT like meds. I have learned to depend on God and to find a positive in EVERY SINGLE SITUATION.
  • “Despite calamity He still has a plan for me and it’s working for my good”

    Standard

    Tin Woman

    Hello F4 Tribe!!!!

    Fibromyalgia is diagnosed by general pain all over and pain in 18 (9 pairs) pressure points as indicated by red dots.

    I rarely have pain in all of them. Thank God!! Recently I have had pain in 6/9 of them (black circles). In addition I had nerve related pain across my upper back, muscle spasms in my right upper back, pain the the center of my hands and feet, burning in my hip that radiates fire down to my thigh, pain in my tail bone and fire in my legs. The extra pain is circled in blue. The days have been hard but I managed to work and have a partial social life and go to church!!! I am pretty proud of myself. I feel like a tin man. Everything is tight and hurts.

     Thursday:

    Ok so I fell asleep last night before I posted. This morning has not started off awesome physically but I am making it. I know people are praying for me and that is keeping me going today. I am trying to keep my mind busy and maybe it wont realize I am in pain. It’s not working yet but hey i’m hopeful lol. Today I really don’t feel good or even ok.

    Friday:

    Last was great! We had an amazing Zumba class. It always does my soul good to be around the women in my class. There is so much love and support in that one room. It’s so refreshing!!!

    I forgot my shoes so I had to wear my converse. I wasn’t elated but thought….. I see other instructors teach in them so it’ll be fine! I got this, I’ll be fine! I mean my feet were already hurting so it couldn’t really get worse. It didn’t! I made it! Now I was tired and won’t ever wear those again but…. I made it! Heading home I was almost in tears thinking about walking Cade 🐶. A friend came and walked him for me. 🙌🏾🙌🏾🙌🏾🙌🏾🙌🏾 I am so thankful for the people in my life!

    It’s 4am and I’ve been up for awhile due to radiating pain in my thighs, calf’s and feet. The bones in my feet feel like they’re breaking AND IM STILL LAYING DOWN!!!! I am dreading getting up.

    Self-check/transparent moment: I am noticing I am developing a fear or some type of anxiety when I think about moving or facing the pain. Hmm, I’m use to the go getter mindset! What is this? Adding this to my prayer journal. Gotta figure it out and squash that! IMMEDIATELY! God has not given me a spirit of fear BUT the Lord has given me power, love and a sound mind!!! Devil I see you 👀. Get that mess out of here!! (2 Timothy 1:7)

    And we’re back! Ok let me get up and walk the dog and get ready for work! I got this!!!

    I haven’t moved yet… 20 min later

    “Ok on the count of 3 I’m getting up and just doing it”

    Today has been long and hard and I’m going to bed.

    Saturday:

    OMG IT IS 60+ degrees and the sun is out!! I feel so amazing! So adventurous! So ready for anything! So I feel so alive!!! I rested about 3 hours, slept for 2 last night but magically I feel good! Well better lol. Good, I’m not sure I remember what that feels like🤷🏾‍♀️. I have so much to do today but I can get it all done and be back in bed by 5pm!

    Ready. Set. Let’s do this……

    Today was so great! I did make myself rest a few hours just because when I feel good I start feeling like superwoman then the next day I feel it in every fiber of my being. But I went to the batting cages tonight! And went 2 rounds!!!!!! I haven’t done that in years. Ahhhhh it’s been such a good day. I’m laying across my bed just reminiscing over all of the events of the day. I’m so blessed!! I pray it is pretty out tomorrow as well 🙏🏾

    Sunday:

    Happy Sunday people!!!!! This morning I started off my day with a prayer to heal a friend and within a few hours they were feeling better. I know that God is NOT a respecter of persons so I know that my healing is coming!! Complete restoration of every moment I lost hurting, joy for every tear I cried, rest for every night I laid awake and movement!!!! I will move freely and fluidly again without the concern of pain. And most of all I will share how God healed my body and those problems I USE to have I DONT HAVE ANYMORE!! “But your condition is chronic and there is no cure”. That’s what man says BUT God, My GOD says:

    “For I will restore health unto thee, and I will heal thee of thy wounds, saith the Lord; because they called thee an Outcast, saying, This is Zion, whom no man seeketh after.”

    ‭‭Jeremiah‬ ‭30:17‬ ‭KJV‬‬

    “No weapon that is formed against thee shall prosper; and every tongue that shall rise against thee in judgment thou shalt condemn. This is the heritage of the servants of the Lord, and their righteousness is of me, saith the Lord.”

    ‭‭Isaiah‬ ‭54:17‬ ‭KJV‬‬

    “For I know the thoughts that I think toward you, saith the Lord, thoughts of peace, and not of evil, to give you an expected end.”

    ‭‭Jeremiah‬ ‭29:11‬ ‭KJV‬‬

    I pray your week is amazing!! Talk to me. What scripture keeps you going? What quote helps you when you’re down?

    Standard

    The Year of the Turn Up

    HEYYYYYY F4 Tribe!!! Geez how I have missed you. So before I get started let me say I have so many drafted post that I will post soon but I wanted to talk to you guys ASAP. With that being said, of course my fingers are not wanting to co-operate at them moment but I promised a lady that I would post soon. Today is soon!!

    Welcome to the brand new year!!! So we are all used to hearing “New year, new me” but I am the same me in this new year.

    So what does this mean for me? Glad you asked! This has got to be the year I turn myself up! I expect more from me. More focus on my goals, more initiative go accomplish my goals. More focus on being who God wants me to be and turning up my fitness level to get more healthy! I’m turning up the volume on my life!

    So how will I do this? Meal prep, cardio, weights and Zumba class.

    Well….. so I started writing this post 2 weeks ago. Things have changed since then. I was getting in the habit of running and class and working (walking) and well to make a long story short my body hated it! As a matter of fact God send me two, YES TWO messages through two women of God! One while I was preparing to pass out from the pain. I have been feeling more faint lately but have only actually passed out once. Crazy how your body can just say “hey, this is too much. BRB”. The WOG (woman of God) text me and then called me. I know it was God because of the things she said. She wouldn’t have known that. Then that Sunday I made myself go to church and my WOG came and prayed for me because I was tugging at her spirit. Talking about a blow to my spirit and mental state!! I have not ran since then. I am watching what
    I eat but not like I should. I really have to be more cautious of what I put in my body.

    Update:

    My current state of mind: exhausted, stressed and unable to remain focused.

    My current health: Fibro is back. Which is sad because other than a few random not great days, I have been feeling pretty good. The past 2 weeks have been not so great. The past week my vision has been very blurry, pain has increased, all day stiffness, lower back pain has been at a steady 8/10, I’ve been in a constant state of nausea. But I have been able to keep food down the last few days so woop woop! Chewing has been hard and my face hurts. I kind of feel like someone punched me in the eye a few times.

    School: starting up again in March. I have enjoyed this brief break!!

    Fitness classes: I have dropped down to teaching two classes a week and that is really all my body can take right now. It saddens me but I have to accept this is where I am right now.

    Medical: I was take Celebrex but gained a lot of weight really fast and it made my legs feel heavy. Make no mistake when the pain becomes awful (by my standards) I will take one. As many of you know my rheumatologist/ pain specialist was found guilty of inappropriate conduct of over 20 women…….ugh! He knew he was guilty and could have said something. He left a lot of people stranded. Anyway I have been without a doctor since October. Well, I finally got in to see one! My appointment is at the end of February, Praise God!!! He is suppose to be really good with fibro and offers things such as water therapy, pain therapy, needling and of course the shots! I never thought I would miss those horrible shots but Lawd Jezus shoot me up!! I am sleeping more but feeling less rested. I’m not sure why? My multi-vitamins and spark by Advocare (which I love) is NOT working.

    Work: equals stress and motivation to keep going to school and have my own! That is all!

    Life: overall my life is amazing!! I am learning more about me daily! Becoming closer with God, my family and friends. I’m forming healthy relationships and letting go of toxic ones. My classes are full of loyal ladies and I am told weekly how awesome I am at what I do (flips hair..I know right). HaHa. Seriously, I still love what I do. I am elated at watching myself grow and I love the me I am becoming!!

    The Turn Up: Honestly ya’ll, I don’t even know. Where to begin or what to do. So I am just praying. I do know that

    “he refreshes my soul. He guides me along the right paths for his name’s sake”

                                                                                                                      – Psalm 23:3 NIV

    Before I go I do want to share one of the messages God gave me this week. As I was riding to work fighting back the tears, because ya’ll know how I feel about myself crying, God said “Don’t be afraid to be the lamb because you’ve got a lion behind you”! YALLLLLLLLLLL!!! If you didn’t catch that let me break it down for you. I am the lamb. The weaker more meek and smaller animal.  God is the ferocious, handle all things, king of the jungle, strong and mighty lion. I am getting happy typing it! So what I took from that is that it’s ok for me to be weaker, for me to cry and not be mighty because baby I have The almighty, all knowing, healing, waymaking, turning it around, restoring, mind clearing, peace giving and body healing God behind me!!!! OHHHHH He is so good!!!!

    Standard

    There’s Hope

    It doesn’t cost a thing to smile and you don’t have to pay to laugh. Er better thank God for that. -India Arie

    Hello F4 Tribe!!!!

    Soooo much has happened since I last blogged. I I’ll try to catch you up

    Body:

    So my body has held up well. There has been 2 panic attacks, 2 shut downs and only a few not so awesome/unmanageable days, that I managed of course lol.

    Symptoms:

    blurred to loss of vision, nausea/vomiting and constant leg and feet pain. Fatigue body and lungs😂! Y’all sometimes walking has me so exhausted and breathing heavy I have to take a break😂😂. The knot on my wrist is back and bigger. It makes my right hand a little “flappy”.

    On the bad days I push through. On the awful days I lay down. On the good days I rejoice!

    Meds:

    Still off of all prescribed meds. Pain is an weekday occurrence and sometimes gets pretty awful. I’m not taking anything heavier than naproxen 500 and ibuprofen 800. I usually take about 1,800 mg day. I’m sure this is too much but🤷🏾‍♀️ right now it’s what I have. I researched and I can take up to 3200mg daily,

    Realizations:

    1-Lots of stress was coming from my job and my ex and internally not dealing with my emotions.

    2- There were devils sent to destroy me and they weren’t red and slimy

    3- I need God more than ever!! My relationship with God was pulling me closer.

    4- Some people come into your life for only a season and after that season they need to exit. Not necessarily because of a disagreement but because their season is over.

    5- I am enough just the way I am. I will continue working to be the woman I am supposed to be. Until then I’m removing all excess from my life!!

    Events:

    1- Birthday (33) Great day

    2- family trip- interesting but amazing!!! White water rafting

    3- stopped going to the office so much. Anxiety decreased drastically!

    4- person who I had a friendship with in the past got engaged and mentioned nothing to me. He is mentioned in a previous post. Found out on IG along with thousands of others. His response was no time….. yes I read it on IG🤷🏾‍♀️ Its crazy how a person can cause the same emotion twice without even being aware. I’m elated that he has found happiness. I also see I need to change the value of our friendship. I clearly think more of him than he does of me.

    5- blocked several people from my social media accounts and from my life!!! Not everyone deserves access.

    6- 4th Cancerversary!!!! The tea is this weekend!! So excited!

    7- actually had a conversation with my ex. Shared how I felt. We don’t see eye to eye but maybe he won’t do the same to the next girl.

    8- started working on my mental state!!

    9- Cade got sick. He has hookworms 😕😢. He was taken to the vet and is feeling better. He ate up a couch cushion last night! 1

    10- I went to saved in the City for the first time! Such an amazing life changing event! 11- finished my class and registered for my next!!

    12- started preparing for my business!!

    13- went to my friends gender reveal

    14- had an amazing “Teal Tea” to celebrate my 4th year being cancer free!!!! It was soooo amazing to be surrounded by so many friends and family!!! To hear some of the things they think of m really touched my heart. My sister even said something…. twice!!!!! She never talks in public! My besties and goddaughters were there! Y’all my mom worked sooo hard to help me do this event!!! I am so beyond thankful for my superwoman!!!! I was up from 4am until 12am and moving around! My body is exhausted!! But I am now done and ready for the holiday! I am resting all day long.

    Goals:

    1- spend more time with me! Loving on me and getting to know me. Take my self out at least 1 time a week. Learn to enjoy me. Learn to be ok in this single time of my life.

    2- spend more time with God. Strengthen my prayer life. I want to be on fire for God.

    3- let go of people in my life who have at any point, that I wasn’t enough. Or have proven that they aren’t a friend to me. I have a tendency to hold on to people. Even people who have intentionally harmed me! I find a way to forgive them and when doing that I allow them to stay in my life. But I never forget that feeling they caused me. So now I pray that as I begin to break away from these bonds that God sustains me in their absence.

    4- work on being a good steward of my time, finances and mental space.

    5- learn to say no!

    Songs: This is my favorite part

    Waymaker

    Won’t He Do It (Remix)

    Lord You Are Good

    War

    I Got That (Hip Hop)

    Bible Verses:

    Forgetting what is behind and straining toward what is ahead, I press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus.

    Philippians‬ ‭3:13-14‬ ‭NIV‬‬

    “Anxiety weighs down the heart, but a kind word cheers it up.”

    ‭‭Proverbs‬ ‭12:25‬ ‭NIV‬‬

    “Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us,”

    ‭‭Ephesians‬ ‭3:20‬ ‭NIV‬‬

    “Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”

    ‭‭Matthew‬ ‭6:34‬ ‭NIV‬‬

    “And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.”

    ‭‭Philippians‬ ‭4:7‬ ‭NIV‬‬

    “I am the Lord your God, who brought you out of Egypt to be your God. I am the Lord your God.”

    Numbers‬ ‭15:41‬ ‭NIV‬‬

    I will/He will be with you. Never leave or forsake you!

    Joshua 1:5, Deuteronomy 31:6 &31:8

    “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

    ‭‭Jeremiah‬ ‭29:11‬ ‭NIV‬‬

    It’s 3:35am. My body is tired. The pain is real but I know it’s because I haven’t been able to rest in 2 weeks. I have so many bruises and sore spots on my legs. My teeth feel like they may come out and my face may cave in!!! Lol but It was worth it!!!

    Standard