Fibro Awareness Q&A

Hey F4 Tribe!!!! May 12th was Fibromyalgia Awareness Day!!! It was also Mother’s Day! I have waited to post because I didn’t want to mix the days plus I wanted to just celebrate her day without anything else. I have seen a lot of post on Instagram where people are posting pictures comparing a “fibro day” and a “typical face the world day”. I realized I don’t have any of those. I don’t capture those days because for me they are UGALY!! Yes, I meant to spell it that way.  While thinking about what else I could do I decided to do a question and answer post. I ask my social media profiles if they had any questions they wanted answered regarding Fibromyalgia. I should have restricted it to only Fibro and not my Fibro because some of the questions were down right rude. I’ll answer a few of them.  So here goes……

  1. How long have you had Fibro? First sign of pain 2/10/17
  2. Who is your doctor? I am now seeing Dr. Chen
  3. What gives you relief? Rest, heating pad, pain reliever and muscle relaxers (mixed)
  4. Did you go to Dr. Dick? Yes I was a patient of his. I had NO issues with him.
  5. Why do you need attention? There are several other things I could do to get attention without being in pain. I blog about it because there are others that are going through this too.
  6. How do you still teach Zumba if you’re hurting? I can push through almost anything. I have a very high pain tolerance level BUT I will cancel if need be. I have also learned to not do high impact the entire class and to listen to my body.
  7. Has Fibro affected your life? I posted about this earlier. I never would have imagined all of the different areas that having Fibro would have
  8. Does weather affect your pain? Cold weather an d rain make me pretty miserable
  9. Have you had hair loss? Yes
  10. How did you know that you had Fibro? This was my very first post. Please go back and read it for a more thorough answer. Short version: I didn’t know. I had pain, muscle spasms that lasted 45+ min. They did all kinds of testing to rule out other diseases. They settled on FIBRO. At first I was apprehensive because I felt like it was an “I don t know what’s wrong with you so I’m going to just say you have Fibro. I had nerve testing done an various other test.
  11. Cold hands and feet? YES!!! It’s very annoying. Sometimes I can be working out and dripping in sweat and my fingertips will be white and freezing or my hands will be glowing pink.
  12. Do you get tired easily? Yes! Sometimes walking to the kitchen from my room is difficult and I have to sit and rest.
  13. What keeps you going? People depend on me every day. I am one of those people. I can’t stop because someone else will suffer or my dreams will. That is not an option!
  14. Does barometric pressure bother you? Yes, Please see my last post “Baro Who”. The rain typically zaps my energy and increases my pain
  15. What are your symptoms? Pain all over and in various places, blurry vision, muscle fatigue, muscle cramps, exhaustion, sweat at random times, brittle nails, dry hair, random fevers, skin sensitive to touch, brain fog
  16. What does it feel like? Like I just ran a thousand miles and i’m dehydrated and exhausted.
  17. Do you have children? Did it make it worse during pregnancy? I do not have children yet. I pray not!! I have heard stories of it getting better during pregnancy.
  18. Does it make you feel like you’re letting your family down? I do sometimes feel like this. I use to feel bad all the time but I am working on allowing family and friends in and let them know what’s going on.
  19. Do you wear special shoes? Um no. lol. Sometimes I wear tennis shoes to keep my feet warm because they ache when they are cold. I do wear leggings a lot because pants with seams hurt my skin sometimes.
  20. Does it ever make your eyes go cross? Cross? No! Blurry, foggy and black sometimes though
  21. Have you tried weed or CBD oil? If so did it help? I did and yes it does! Probably the last time I was pain free!! If they legalize it I won’t be in pain anymore!!!
  22. Have you tired holistic treatment? I have. As well as a cleanse to detox my blood. It was hard but I think if I had stayed on it I would have seen more results.
  23. I think it’s fake. This is a REAL statement not a question
  24. How do you cope with stress? Does stressing make your pain worse? Stress makes it all worse!! I PRAY, read inspirational messages, try and keep a positive mindset and stay away from people who disturb my peace and bring back negative thoughts or feelings
  25. Do you have lumps on your hands or feet or any joints? No sometimes they get hot or swell
  26. When you got the shots did they help? YES!!!!!!! If you can stand to get them then they are worth it. I did learn to relax and take it easy all day on the day I get the shot. It definitely helped!!
  27. What helps your pain? Sleep, ibuprofen and muscle relaxers. I take way too much a day but It keeps the pain at bay without being admitted to the hospital
  28. Do you have skin problems? Random outbreaks and sensitivity but nothing major. I have had sensitive skin all of my life
  29. Are you in pain every day? Yes! Ev-ery-sin-gle day! Some days are far more bearable than others
  30. What is the thing you feel like you lost or miss most? Ok so I will try not to get all “holy” BUT I am going to say that I feel like I didn’t lose because I feel everything happens for a reason and I God is going to restore whatever I lost. Now, with that being said obviously there are things I miss doing or feeling like: running on the treadmill, having energy all day, not being in pain or having to think about what I wear, losing weight when I am trying. But I think the thing
    I miss the most is trusting my body! I don’t know where the pain is going to come from or when it will hit. I have to now prepare for leg pain (crutches in my trunk) pain reliever (constantly in my purse, work bag and gym bag) eyes drops and heating pad on hand.
  31. Do you try rubs or any ointment over the counter? I try various muscle relaxers and OTC pain patches
  32. Do you have anxiety? Is it related to Fibro? Yes and Yes. Although I realize it is more when the pain is high and my emotional threshold is low
  33. How do you feel? tired
  34. Do you ever just want to not get out of the bed? Constantly lol. But most of the time I feel worse lying down.
  35. Why do you say “I’m Ok” knowing you aren’t? Well, I feel it’s easier to just say that and let people go on vs telling them and they have to fee l bad for me. Talking about it doesn’t help.
  36. How has it affected your emotions? I will say that I am less empathetic to people who complain about the slightest thing. I am working on it though.
  37. Did you have to stop working? No, I am still working full time and teaching Zumba.

Whew!!!!! That was a lot. Thank you guys for responding to my post. I truly hope that you have gained some type of insight. I feel so exposed lol! Below are a few memes that represent what I or others may feel at times.

I will do another post like this maybe at the end of summer! Thank you guys again for following me, standing with me in prayer and sending kind messages I truly appreciate it!

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Baro Who?

Hello my F4 Tribe!!!

My my has it been a while since I have blogged!!! 2 months!!!!I will attempt to catch you up on life, well what’s been going on in my life. I kind of wish this was a dialogue because I would love to know what you all have been doing. Soooo…. feel free to leave me a quick synopsis of what’s going on under the comments section at the bottom.

Ok so this will be  two part post because I really want to update you BUT  I also want to talk to you about today’s topic; which is……………….. Barometric pressure!!! I absolutely hate it but I am excited to talk about it.

So what is this barometric pressure?

Barometric pressure is atmospheric pressure. (definition from google) I know I know, so official.

How does it affect humans? Well let me tell you what I have been told and experienced.

When asked the question “How does barometric pressure effect you” people with various illnesses said:

  • “I.feel.like.crap”
  • “my head feels like it’s going to pop off”
  • “my back hurts, my shoulders hurt and so do my feet”
  • “I can move”
  • “well, I’ve been in bed all day”
  • “doesn’t bother me much”
  • “my skin hurts on my hands and my legs”

So as I am typing my fingers are beginning to ache and my fingertips are burning as if I have touched something hot. How ironic! And this is why I am making this post. This will be a one part post now. Gotta role with the Fibro punches! So typically hours, sometimes a day before the rain my body begins to hurt. Since my accident I have had no days without pain. That is technically called a “Fibro Flare”. So essentially the traumatic experience or impact of the wreck sent my body into a  flare. And now is raining. I woke up this morning with elevated neck pain, elevated back pain, aching in my limbs, my face (cheek bones and jaw bones) shoulder pain and now my fingers are aching. The ache is similar to a cold, dull yet throbbing pain deep inside the bone. Flares can often be caused by: weather, physical or mental exhaustion or mental/emotional stress. The Fibromyalgia Support Group on Facebook that I speak of sometimes has countless examples of traumatic events that cause people to flares. For example: divorce, cheating spouse, illness of a child or death of friend of family member, car accidents, physical accidents, the common cold, strep  and other illnesses. There is so much that can trigger a flare. Each person is different and each Fibro case is different. Mine started off with extreme muscle cramps that lasted 45 min on average. The symptoms graduated to me not being able to walk sometimes and panic attacks. Now I just have severe pain all over my body. I rarely have pain where I can’t at least walk with a limp (lean with rock with it, haha) or push through it. I may be covered in pain patches BUT I AM MAKING IT!

Other symptoms like headaches, surgery scar tissue or plates, or increased maladaptive behaviors can be caused by barometric pressure change.

Well guys I am going to go rest and my hands have had enough of typing! I have Zumba tonight. YES I STILL TEACH! Now you knew better than to think that. Love you all!!

General Things I’m praying for:

  1. A baby that accidentally shot himself with a nail gun I think (some type of tool). He’s fighting for his life
  2. The family of the 15 year old who killed himself
  3. My friend who has not had more than 3 hours of sleep a night for the past 4-5 months
  4. 2 of my church family members who have broken bones
  5. All who have chronic or mental illnesses who suffer in silence

Songs that are keeping me going:

(ok so….pretty much the entire Songs for the Storm, Vol.1)

And of course my favorite because HE IS tending to me. He sees me. He is keeping me. I am His sheep and He is my Shepherd. And He will come see about me! HE will heal me! Ok let me stop because I when I think about how He is going to heal my bod y from this pain and this illness they say they don’t have a cure from I GET EXCITED and I CAN’T HELP BUT PRAISE HIM!!! WHEWWWWWW! He is So Good!

Have an amazing week Tribe and don’t forget to let me know how you are. Have you had or do you know anyone who experiences symptoms from barometric pressure? If so let me know!!

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Tin Woman

Hello F4 Tribe!!!!

Fibromyalgia is diagnosed by general pain all over and pain in 18 (9 pairs) pressure points as indicated by red dots.

I rarely have pain in all of them. Thank God!! Recently I have had pain in 6/9 of them (black circles). In addition I had nerve related pain across my upper back, muscle spasms in my right upper back, pain the the center of my hands and feet, burning in my hip that radiates fire down to my thigh, pain in my tail bone and fire in my legs. The extra pain is circled in blue. The days have been hard but I managed to work and have a partial social life and go to church!!! I am pretty proud of myself. I feel like a tin man. Everything is tight and hurts.

 Thursday:

Ok so I fell asleep last night before I posted. This morning has not started off awesome physically but I am making it. I know people are praying for me and that is keeping me going today. I am trying to keep my mind busy and maybe it wont realize I am in pain. It’s not working yet but hey i’m hopeful lol. Today I really don’t feel good or even ok.

Friday:

Last was great! We had an amazing Zumba class. It always does my soul good to be around the women in my class. There is so much love and support in that one room. It’s so refreshing!!!

I forgot my shoes so I had to wear my converse. I wasn’t elated but thought….. I see other instructors teach in them so it’ll be fine! I got this, I’ll be fine! I mean my feet were already hurting so it couldn’t really get worse. It didn’t! I made it! Now I was tired and won’t ever wear those again but…. I made it! Heading home I was almost in tears thinking about walking Cade 🐶. A friend came and walked him for me. 🙌🏾🙌🏾🙌🏾🙌🏾🙌🏾 I am so thankful for the people in my life!

It’s 4am and I’ve been up for awhile due to radiating pain in my thighs, calf’s and feet. The bones in my feet feel like they’re breaking AND IM STILL LAYING DOWN!!!! I am dreading getting up.

Self-check/transparent moment: I am noticing I am developing a fear or some type of anxiety when I think about moving or facing the pain. Hmm, I’m use to the go getter mindset! What is this? Adding this to my prayer journal. Gotta figure it out and squash that! IMMEDIATELY! God has not given me a spirit of fear BUT the Lord has given me power, love and a sound mind!!! Devil I see you 👀. Get that mess out of here!! (2 Timothy 1:7)

And we’re back! Ok let me get up and walk the dog and get ready for work! I got this!!!

I haven’t moved yet… 20 min later

“Ok on the count of 3 I’m getting up and just doing it”

Today has been long and hard and I’m going to bed.

Saturday:

OMG IT IS 60+ degrees and the sun is out!! I feel so amazing! So adventurous! So ready for anything! So I feel so alive!!! I rested about 3 hours, slept for 2 last night but magically I feel good! Well better lol. Good, I’m not sure I remember what that feels like🤷🏾‍♀️. I have so much to do today but I can get it all done and be back in bed by 5pm!

Ready. Set. Let’s do this……

Today was so great! I did make myself rest a few hours just because when I feel good I start feeling like superwoman then the next day I feel it in every fiber of my being. But I went to the batting cages tonight! And went 2 rounds!!!!!! I haven’t done that in years. Ahhhhh it’s been such a good day. I’m laying across my bed just reminiscing over all of the events of the day. I’m so blessed!! I pray it is pretty out tomorrow as well 🙏🏾

Sunday:

Happy Sunday people!!!!! This morning I started off my day with a prayer to heal a friend and within a few hours they were feeling better. I know that God is NOT a respecter of persons so I know that my healing is coming!! Complete restoration of every moment I lost hurting, joy for every tear I cried, rest for every night I laid awake and movement!!!! I will move freely and fluidly again without the concern of pain. And most of all I will share how God healed my body and those problems I USE to have I DONT HAVE ANYMORE!! “But your condition is chronic and there is no cure”. That’s what man says BUT God, My GOD says:

“For I will restore health unto thee, and I will heal thee of thy wounds, saith the Lord; because they called thee an Outcast, saying, This is Zion, whom no man seeketh after.”

‭‭Jeremiah‬ ‭30:17‬ ‭KJV‬‬

“No weapon that is formed against thee shall prosper; and every tongue that shall rise against thee in judgment thou shalt condemn. This is the heritage of the servants of the Lord, and their righteousness is of me, saith the Lord.”

‭‭Isaiah‬ ‭54:17‬ ‭KJV‬‬

“For I know the thoughts that I think toward you, saith the Lord, thoughts of peace, and not of evil, to give you an expected end.”

‭‭Jeremiah‬ ‭29:11‬ ‭KJV‬‬

I pray your week is amazing!! Talk to me. What scripture keeps you going? What quote helps you when you’re down?

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